The singer shared their experience of losing control after the seizure.
Céline Dion's experience after being diagnosed with Stiff Person Syndrome (SPS) is revealed in a revealing video.
Dion, aged 56, shares her story in an upcoming film after receiving a diagnosis in 2022.
Warning: Some readers may find the below clip distressing
Credit: Prime Video
SPS is a unique autoimmune neurological condition that can lead to muscle stiffness and distressing spasms.
The disorder's symptoms may appear and disappear, but they can also deteriorate as time goes by.
In a scene from the documentary, Dion can be observed grappling with the syndrome as she experiences a seizure that endures for 10 minutes.
She struggled to breathe while professionals tried to ease the pain from the ‘crisis' in a recorded medical consultation.
After successfully enduring the difficult situation, Dion wraps herself in a cozy blanket and shares her experience of losing control over her body.
She says that whenever something like this occurs, it causes a great deal of embarrassment and makes you feel unsure of how to express it. It's like not having control over yourself, you know.
Dion has spoken honestly about her experience after her diagnosis. (Cindy Ord/Getty Images)
Despite her condition, Dion is determined to continue pursuing her career.
She says, “I can still see myself dancing and singing. I always come up with backup plans, you know. That's just who I am. If I can't run, I'll walk. If I can't walk, I'll crawl. But I won't give up. I won't give up.”
Irene Taylor, the director of Dion's documentary I Am: Céline Dion, talked to PA about the moment when the singer had a seizure, questioning whether she should capture it on film.
However, she remembered Dion's advice of not needing ‘permission to film something', so she chose to continue recording..
Dion was forced to cancel her world tour after being diagnosed. (Prime Video)
During the initial 30 seconds, my attention was not on recording the video. Instead, I was responsible for managing the sound, while my cinematographer was present.
In the room, many people were doing what they were trained to do to help her. They all had medical training on how to handle this situation.
She was in the most capable hands possible. If they required additional assistance, I would have immediately offered my help without hesitation. However, I chose to continue filming, aware that it might not be necessary.
Even though Taylor admitted the scene wasn't necessary, Dion urged the director to include it in the movie.
Taylor mentioned that the final film is exactly the same as what was shown to her the first time, with no changes requested.
The documentary was released after Dion revealed last year that she would not be able to go on her world tour as planned.
Dion expressed, “I want everyone to be aware that I won't give up… and I'm eagerly looking forward to seeing all of you once more!”
Céline Dion's documentary, “I Am: Céline Dion,” is now streaming on Prime Video globally starting today, June 25th.
Featured Image Credit: Amazon Prime/Amazon MGM Studios
